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Below are the 20 most recent journal entries recorded in Face-Blindness (Prosopagnosia)'s LiveJournal:

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Monday, December 30th, 2013
4:49 pm
[reikimaster]
good article in NY Times
not sure if anyone is out there any more  :-) but thought i'd post this as I found it helpful and informative:
http://opinionator.blogs.nytimes.com/2013/12/11/have-we-met/?_r=1

link
Friday, March 2nd, 2012
10:40 pm
[jodawi]
Poll #1823574 Aperger's and Faceblindness

How faceblind are you?

Exceedingly
1(4.2%)
Lots
8(33.3%)
Some
15(62.5%)
Not
0(0.0%)
Mu
0(0.0%)

Have you been diagnosed with Asperger's or other Autism Spectrum disorder?

Yes
3(12.5%)
Sorta
5(20.8%)
Not really
1(4.2%)
No
15(62.5%)
Mu
0(0.0%)

How many of these do you think apply more to you than they do to most people? (Frequently debilitating rather than mild incidents every once in a while.)

...may have difficulty communicating with co-workers or supervisors.
7(8.0%)
...may experience difficulty managing time. This limitation can affect their ability to complete the task within a specified timeframe. It may also be difficult to prepare for, or to begin, work activities.
7(8.0%)
...may exhibit atypical body movements such as fidgeting. Atypical body movements are sometimes called stimulatory behavior, or "stimming." ...can also disturb co-workers at times.
10(11.5%)
...may not be familiar with or understand abstract concepts like corporate structure, hierarchies of responsibility, reporting requirements, and other structural elements of the workplace.
3(3.4%)
...may have difficulty managing stress in the workplace. Situations that create stress can vary from person to person, but could likely involve heavy workloads, unrealistic timeframes, shortened deadlines, or conflict among coworkers.
11(12.6%)
...may experience decreased concentration. ... intolerance to distractions such as office traffic, employee chatter, and common office noises such as fax tones and photocopying.
9(10.3%)
...may have difficulty getting or staying organized, or have difficulty prioritizing tasks at work. ... planning, goal setting, and task completion.
8(9.2%)
...may have difficulty exhibiting typical social skills on the job. ...interrupting others...difficulty in listening, not making eye contact...difficulty interpreting typical body language or nonverbal innuendo.
11(12.6%)
...may experience memory deficits that can affect their ability to complete tasks, remember job duties, or recall daily actions or activities. They also may have difficulty recognizing faces.
12(13.8%)
...may experience difficulty performing many tasks at one time. This difficulty could occur regardless of the similarity of tasks, the ease or complexity of the tasks, or the frequency of performing the tasks.
9(10.3%)

Given the traits above, do you think it likely that you have Aspergers/Autism Spectrum disorder?

Yes
8(33.3%)
Sorta
3(12.5%)
Not really
4(16.7%)
No
8(33.3%)
What part of Mu don't you understand?
1(4.2%)

Can you resist?

Tickybox
10(100.0%)
Tuesday, January 17th, 2012
5:32 am
[milimod]
Doonesbury
Reading Hunter S. Thompson's biography, which led me to catch up with Doonesbury. I don't get a newspaper, and have missed a lot of the strip as a result. Slate.com has it, going back about a year and a half, so I've been cruising through, having a great time. Trudeau is still freaking brilliant.

But it's caused me to notice something: I've always had a slight problem distinguishing his characters. Zonker's pretty easy since he never cut his hair. Duke is usually hallucinating (as indicated by the little stars that surround his head). Mike's daughter Alex has her unique hairstyle. But unless I'm really focusing and paying attention to context, it can take me a little time to recognize B.D. (who no longer wears his trademark helmet and has gray hair like Mike), or to distinguish Joanie from Sam from Boopsie (who are all blondes). Jeff Redfern and Leo (Toggle) are relatively new characters; they're young guys, and both frequently show up in a war context. So I've had to work on telling them apart (Leo has the eyepatch and blond hair; Jeff is a redhead, who often helpfully dresses in his "Red Rascal" getup).

While it's slowed my reading down a little, I'm finding this exercise useful because it's a non-pressure situation. Nobody's asking me "Whatsamatta? Don't you recognize me? I'm offended..."

Duke doesn't care if I don't recognize him. It would probably make him happy if he did know.

Anybody else have trouble with the way comic-strip characters are drawn? How do you deal with it?

Current Mood: curious
Saturday, October 29th, 2011
4:38 pm
[fruittingles]
Surfing about today, and found this:
http://www.bbc.co.uk/news/uk-scotland-glasgow-west-13807268
All related posts I can see only mention two patients, so I can't really tell how effective it is, or how expensive the procedure is.
But hey, it's worth keeping an eye on.
Sunday, January 30th, 2011
11:33 am
[codeman38]
Re-post: Looking to interview someone w/Prosopagnosia
Reposting this from a comment on the moderated membership post because I don't think anyone's actually looking at that anymore:

Hello,

My name is Heidi Brayer and I am a writer in the master's program at Carnegie Mellon University. I am writing a paper on Prosopagnosia and I was hoping to talk to someone about their experiences.

If anyone is interested in being interviewed (for about 15 minutes via telephone) please email me at hap1026@aol.com. Please forgive the intrusive posting.

Sincerely,

Heidi Brayer


Edit: I'm not Heidi. I'm just reposting this for her. Please address all comments about this to the e-mail address above.
Monday, January 17th, 2011
11:24 pm
[codeman38]
Moderated membership for community?
Would everyone be OK if I switched this community to moderated membership? The main reason I ask is that we've been getting a lot of posts from Russian spammers here lately, and it's getting tiring to delete their posts.

Edit: For right now, I've set community membership to moderated. I may disable this at some point in the future, but I'm pretty good about checking my e-mail from my phone. I've also added a note describing the situation to the community profile.

Current Mood: curious
Tuesday, January 12th, 2010
4:18 am
[postphotdrake]
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Current Mood: loved
Monday, January 11th, 2010
4:30 am
[coreallyherna]
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Current Mood: loved
Sunday, January 10th, 2010
1:29 pm
[neohistemurth]
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Current Mood: loved
Sunday, November 29th, 2009
1:21 pm
[xshardsx]
Hello All
I was just puttering around the internet and started looking up groups related so some of my interests.

So, does anyone here have any stories about the benefits of prosopagnosia? For instance, my skills at bluffing my way through situations is incredible, because I have so much practice pretending to know people. Someone who I know from one context will approach me while I'm in another, and usually it's more of a pain in the ass to try to explain to them what prosopagnosia is than to just pretend like I know exactly who they are and hopefully piece it together over the course of the conversation. So I dunno. Any thoughts?

Current Mood: curious
Wednesday, August 26th, 2009
2:35 pm
[reikimaster]
from "Through the Looking Glass"
...So she got up, and held out her hand.  "Good-bye, till we meet again!"
she said as cheerfully as she could.
   "I shouldn't know you again if we *did* meet," Humpty Dumpty replied
in a discontented tone, giving her one of his fingers to shake: "you're so
exactly like other people."
   "The *face* is what one goes by, generally," Alice remarked in a
thoughtful tone.
   That's just what I complain of," said Humpty Dumpty.  Your face is the
same as everybody has--the two eyes, so--" (marking their places in the air
with his thumb) "nose in the middle, mouth under.  It's always the same. Now if you had the two eyes on the same side of the nose, for instance--or
the mouth at the top--that would be *some* help."
   "It wouldn't look nice," Alice objected.  But Humpty Dumpty only shut
his eyes, and said "Wait till you've tried."
   Alice waited a minute to see if he would speak again, but, as he never
opened his eyes or took any further notice of her, she said "Good-bye!"
once more, and, getting no answer to this, she quietly walked away...
Thursday, April 23rd, 2009
7:39 pm
[prepare4trouble]
A feature on The One Show (UK)
There was just an article on face blindness on the One Show, a program on BBC 1 in the UK, as part of their series on memory. Nothing I've not heard before, but it's nice to see something that'll hopefully raise a bit of awareness. Just in case anyone's interested.
Friday, April 3rd, 2009
9:18 pm
[codeman38]
Watching Quantum of Solace right now, and I'm realizing I have a bit of trouble telling Bond and several other characters apart.

Yeah, this could be problematic...

Edited to add: Thankfully, most of the characters in question were either killed or otherwise became plot-insignificant by the movie's halfway point, thus rendering this moot. Heh. (Though I did wonder, as a result of the confusion, how one character managed to be resurrected... :-p)
Wednesday, February 18th, 2009
7:37 pm
[matilda2009]
Lazy eye
Hello
I have only been doing research since last night but I have learnt so much in 24 hours about Prosopagnosia

I read today that lazy eye and turned eye as a child could be a contributing factor for some people
10:57 am
[matilda2009]
My first post


Hello
I believe I have Prosopagnosia for example  I cant describe  a person say who has just served me at the bank. If someone asked me to describe the person who served me I couldnt tell them

and
recognition impairements Motor car   I read number plates to find even my own car

and dog  Cannot describe a dog in the street for example
and topographical disorentation
Regards
Matilda (Australia)
Sunday, February 8th, 2009
9:43 am
[reikimaster]
UK documentary
Please forward this wherever you think people might be interested (and
note he's looking for people in the UK only):

DOCUMENTARY CONTRIBUTERS NEEDED
My name is Dave Graham and I'm a documentary filmmaker and I am
researching into a documentary based on people who suffer from
faceblindness, I feel this is a good opportunity to educate people on
a condition that very little is known about.  Please get in touch if
you feel it is something you would like to get involved in.  You can
contact me on david.graham@europe.mccann.com
Kind regards
Dave Graham
Wednesday, January 28th, 2009
4:50 pm
[stormdog]
Animé with a faceblind (sort of) character.
I just posted something about this in my personal journal today, but I thought it was worth sharing here. There's an animé series I've just been watching called Kashimashi. Imagine my surprise when, about half-way through, I realized that one of the characters has a condition that's very much face-blindness-like. That's part of what I wrote about, and I thought I'd post the relevant portion here in case the readers of this community are interested.

-------------

There's this...condition...that Yasuna is dealing with. Through the beginning of the series, it's demonstrated that she's rather anti-social and pulls away from people, preferring to be by herself and shunning socializing with her classmates. She seems either snobbish, or extremely shy. I preferred to think of her as extremely shy because I can relate to that, and I like to give people the benefit of the doubt. And she seemed more scared that disdainful.

In the second disc, her avoidant behaviour was explained, and the reson behind it shocked me. She can't tell men apart. When she sees them, it's like she's seeing a gray blur, and all she knows is that it's another faceless, nameless person who she can't recognize or connect with. It's as though someone had taken faceblindness, tweaked it a little bit to make it more accessible, and put it into a TV show.

She's a loaner with no friends because she can't tell who she's talking to and is scared of offending people by not knowing their names and upsetting people in the hallway, or in class, or at the karaoke house. She pulls away from invitations to parties because she can't deal with trying to keep track of that many people. She declines to play her flute for a project that others in her music class want to put together because she won't know who half of them are. And even though she became close to Hazumu before he became female, and had romantic feelings for him, she turned down his request for a date because, even though she could somehow recognize him, she was scared that she'd suddenly find that she couldn't tell him apart from her other male classmates.

I couldn't believe what I was seeing when the explanation came out. When I made the connection in my head between her seeing males as faceless blurs and the problems I have with faces, it was stunning. When she was terrified to try to return a dropped notebook to its owner because she couldn't tell who he was, I was taken back to my days trying to make my way through school, never knowing who my classmates were. And as it became clear how isolated this disability has made her... it made me cry. I've been there. I am there still; I still feel so isolated by it sometimes. At conventions, at parties, at any social events with more than a handful of people... I was shocked. Empathetically saddened and unexpectedly validated at the same time.

As I was talking to Moira, I speculated that maybe it would be possible to do a short film about face-blindness that could make it more understandable to people. Something that could popularize it and make it more understood. I don't know; I wouldn't know where to start with something like that. But I just had to write a little bit here about how amazing it was to see someone in mainstream (more or less) media with the same (more or less; I know, work with me here) condition that I have. I don't dwell on it much, but I've had to admit to myself that I really am disabled, and it's an invisible disability, and that I share the feelings that others with invisible disabilities have expressed in various mediums. And seeing Yasuna struggle to interact with people that she can't recognize or tell apart, even though she's a fictional character, took away a little bit of that sense of isolation. I felt understood. I don't know how much sense that makes when there's nobody actually doing the understanding, but it was a very good feeling.

Current Mood: thoughtful
Tuesday, December 23rd, 2008
12:12 pm
[stormdog]
Hello!

I don't think I've posted here before, so greetings to you all. I tend to forget about reading communities in Livejournal. In fact, circumstances have recently lead me to look for more information on prosopagnosia and I decided to do a search to see if there was a Livejournal community about it. Imagine my surprise in finding that I was already a member!

Anyway, I have just seen a neurologist about prosopagnosia, topographical agnosia, possible autism spectrum disorder, and some memory problems, all (so far) self diagnosed. I have an appointment in March for an 8 hour long neurological workup. I believe they're going to scan my brain with one of those machines that shows where activity is happening while I think; I've always thought those were really nifty so I'm kind of excited about that. But I digress.

I was looking for a group of prosopagnosics to see if they have a similar experience in regard to memory about people. Here's something I wrote in a locked entry in my personal journal about face blindness and how, for me, it seems to be related to inablity to keep information about other people in my head. Or to put it another way, an inability to get to know them on a personal level.


Thank you. Thanks for telling me how interesting I am and that you'd like to get to know me better. The feeling is mutual.

It's funny that you say that though. When I was talking to the neurologist, she said the same things. That I seemed warm and affable and easy to talk to. And I feel like I am. The problem is that, even though, deep down, I really do enjoy talking to people and getting to know them and about them, my brain is broken in such a way that it's really difficult for me to do so. It's not because of shyness, though I think that life-long problems with people have ended up making me shy. It's not because of fear of people, though again, life-long problems with people really have made me fear them to some degree.

If I haven't really explained it to you before, here's the deal. Being faceblind, it's hard for me to tell people apart by the way they look. That makes things difficult in itself, though it's easier if there are only a few people round, maybe four people apart from me at the most. I just can't remember who's who very well with more than that especially if they're people I don't know quite well already.

And on top of that...I can't seem to remember things about people. I think that it's related to being faceblind; I think that most people use faces as a file header to store information on people, and because I don't have the ability to do that, I misfile and lose information. At least that's my theory. I guess we'll find out more when I have my follow up with Dr. Book. But the long and short of it is that, when I'm meeting more than one new person at a time, I just can't remember things about them. I forget bits of conversation, or get conversations mixed up between people. I can't remember, at a party for example, how everybody knows each other or is related to each other. I can't even remember names. When I hear two or three or more names at a time, and sometimes even just one, I no sooner hear the name than it's gone out of my head.

I was at Rockhead's [this is a local comics and games store] with Andrea [my wife] once and we met this interesting person who does miniatures and costuming and stuff and we talked to her for about twenty minutes. By the time I left the store, I'd forgotten her name, and most of what she looked like. And I've met the owner and his wife and their business partner a couple times, and I have no idea what the women's names are or what they look like. (I remember the owner because he has a full, bushy beard and longish graying hair with a little bit of a curl to it.)

I guess what I'm saying is that I can go out by myself and do things if I need to. I do that sometimes, and I'm less scared about it than I was when I was small. (I used to be too afraid to go into a store and buy something by myself; I can do that now! *grins*) But I'm always going to have the facial recognition problems, and I think I might always have the memory problems; I'm not sure that they're things I can 'get better' at. These are things my brain doesn't seem to do right.

I can deal with people in my everyday life, and I can fake it well enough at work to keep my job even though I've worked in the same building for over three years and can only recognize four or five people immediately and confidently by sight, and that's a very good thing. But typical, relaxed, enjoyable socialization in group settings like conventions and other gatherings of new people is something that I think may really be out of my reach. I guess learning to interact with a group of friends that I already know in a way that keeps me from feeling like I merely sit and listen to everyone else talk is something that I can get better at though. I'm working on that, though I'm not sure how most times.


What I'm really curious about is whether you have the same problem with remembering facts about people as well as faces. I feel like a lot of the information get from people goes into my brain and gets lost, or even gets attached to the wrong person. I'm guessing that the reason may be because I don't have that solid face association to file the info under, but I don't really know.

Does anyone else share this problem here, or is it just faces for you?

Current Mood: curious
Tuesday, November 25th, 2008
10:27 am
[ohmi02]
I just ran across an interesting article on faceblindness, and I didn't see it posted here already, so I thought I'd link it:

http://www.mindhacks.com/blog/2008/11/not_connecting_with_.html
Wednesday, July 2nd, 2008
12:48 pm
[milimod]
Recalling Anthony
I had a conversation with a guy named Anthony from one of our branch offices.  We e-mail back and forth a lot and I know I've met him before.

We talked face to face today, and here's what I remember about Anthony:

Tall, stout, gray hair (fairly long); some sort of mole or other birthmark on his face; striped shirt.

If I see him again, chances are I won't recognize him unless I go to his office and he's sitting at the desk he was at the last time. 

I wonder if part of face-blindness is slow learning.  I tend to be a slow learner in other areas -- I don't pick things up that quickly and have to be exposed to something numerous times before I really get it. 

Anyway...just reporting in from the trenches.
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